Our Outcomes, and the Honest Version of the Data
We measure client outcomes with two instruments: the SF-36 Health Survey, used in clinical research worldwide, and our own Nervous System Health Assessment. This page shows what that data says, how we collect it, and where it is thin. We report observed outcomes in a self-selected coaching population, not a controlled trial.
The Numbers at a Glance
Two complementary instruments, kept separate on purpose. The Nervous System Health Assessment (NSHA) gives us scale and repeated within-person tracking. The SF-36 gives us an external, internationally validated yardstick that we do not control.
Who this data describes
Ages 9 to 86 (median 40). Illness duration from 1 month to 50 years (median 4 years). Conditions include CFS/ME, long COVID, post-viral fatigue, fibromyalgia, POTS, and dysautonomia.
Severity at intake
Share of assessments at each activity level (n=3,874 with activity data). 30.6% arrive housebound or worse.
The most common symptoms at intake
Share of 5,313 assessments reporting each symptom. The average person reports 12.5 symptoms at once, from a list of 290 we track.
Nervous System Health Assessment (NSHA): within-person change
Our proprietary assessment maps cognitive capabilities (7 sub-domains), physical capabilities (7 sub-domains), symptom load, and activity level on 0 to 5 and 1 to 7 scales. 825 clients completed two or more assessments, so we compare each client's first assessment to their most recent one, a median of 124 days apart. This is genuine before-and-after data in the same people.
"Improved" counts any measurable positive change from a client's first assessment to their most recent. We show the average magnitude alongside each rate so the numbers are not read as all-or-nothing.
SF-36 Health Survey: scores by tenure
The SF-36 is a clinician-recognized instrument used in thousands of published studies. We score it with the standard RAND-36 algorithm. Each client completes one baseline survey and one follow-up survey. We group those follow-ups by how long the client had been in the recovery system.
Where clients start: SF-36 baseline scores
Score out of 100 at intake, where higher is better (n=84). Role Limitation (Physical) at 6 of 100 means near-total inability to carry out normal daily roles.
| SF-36 Domain | Baseline | 0-6 Month | 6-12 Month | 12+ Month |
|---|---|---|---|---|
| General Health | 35% | +18% | +28% | +57% |
| Physical Functioning | 48% | +16% | +28% | +34% |
| Role Limitation (Physical) | 6% | +14% | +29% | +36% |
| Role Limitation (Emotional) | 17% | +35% | +29% | +50% |
| Energy / Fatigue | 25% | +18% | +24% | +17% |
| Emotional Wellbeing | 47% | +16% | +20% | +12% |
| Social Functioning | 34% | +26% | +37% | +55% |
| Pain | 61% | +8% | +8% | +39% |
SF-36 scores range from 0 to 100, where higher is better. Values are percentage-point gains from baseline. These bands are different clients at different tenures (n=84 baseline, n=92 at 0-6mo, n=61 at 6-12mo, n=14 at 12+mo), so they are cross-sectional snapshots, not a within-person trajectory over time. The 12+ month band is small (n=14). Clients whose scores stayed low may have left before reaching the longer bands.
The same table, visually: gains by tenure band
Percentage-point gain vs baseline (bar scale 0 to 60). Reminder: each band is a different set of clients, and the 12+ month band is 14 people.
Most severe cases show the largest gains
Clients who entered at the lowest baseline scores averaged +41% improvement across all 8 SF-36 domains, versus +22% for the average client, with the largest gains in Pain (+60%), Social Functioning (+49%), and Emotional Wellbeing (+47%). Part of this gap reflects regression to the mean: clients selected at the floor tend to move upward on remeasurement regardless of intervention. We present it as an observed pattern worth studying, not as proof of effect.
Most severe cases vs the average client
Percentage-point gain vs baseline (bar scale 0 to 60). Part of this gap reflects regression to the mean, as noted above.
Cross-instrument check
52 clients completed both instruments. Of those 52, 47 improved on their overall SF-36 score, and 23 improved on both the SF-36 and the NSHA at the same time. Agreement between an independent, validated instrument and our own supports the reliability of the observed gains. It does not establish cause.
What This Data Can and Cannot Say
- These are aggregate, observed outcomes, not controlled trial results. There is no control group and no randomization.
- The population is self-selected. Clients who complete a follow-up survey may differ from those who do not, which can bias results upward.
- The SF-36 tenure bands are cross-sectional. Different clients sit in each band, so they cannot establish a within-person trajectory over time.
- Some subgroups are small. The 12+ month SF-36 band is 14 people.
- The most-severe subgroup analysis is affected by regression to the mean.
- The SF-36 measures function and quality of life, not post-exertional malaise (the defining feature of ME/CFS). A normal-range score reflects normal-range functioning on this instrument, not a clinical determination of recovery.
- We are transparent about all of this, and we will report the updated numbers as the larger cohort matures, whichever direction they move.
The Questions a Careful Reviewer Should Ask
These are the toughest fair questions about our data, asked the way a skeptical clinician or researcher would ask them, with our honest answers. We'd rather raise them ourselves than have you wonder if we've thought about them.
Your SF-36 sample is only 90 people. Isn't that small?
▼Do the SF-36 tenure bands show the same people improving over time?
▼Isn't the "most severe cases improve most" result just regression to the mean?
▼Without a control group, how do you know the recovery system caused any of this?
▼The NSHA is a questionnaire you designed yourselves. Why should anyone trust it?
▼"64% improved" by how much? Does any tiny change count?
▼What about the people who didn't improve and stopped filling in surveys?
▼Explore the Data Yourself: The Live Outcomes Dashboard
The numbers on this page are a snapshot. The full dataset lives in an interactive dashboard that reads our SF-36 responses directly, scores them with the standard RAND-36 method, and shows the before-and-after change across all eight domains with filters, effect sizes, and confidence intervals. It refreshes nightly, so as the roughly 600 pending follow-up surveys come in, the dashboard updates with them.
All charts run on de-identified data. Access is code-gated, and we share it with verified healthcare professionals.
We verify each request and reply with your access code and our practitioner packet: the outcomes one-pager, the methodology and limitations write-up, and our referral guide. Prefer email? Write to miguel@cfsrecovery.co or message us on LinkedIn.
Already have a code? Open the dashboard.
Want the Full Picture?
We keep a detailed outcomes whitepaper with the complete methodology, scoring approach, sample sizes, and every limitation. If you are a clinician evaluating our work, or a person deciding whether this is worth your time, we would rather you scrutinize it than take our word for it.
For Practitioners: request the whitepaper
You can also watch real recovery stories on our recovery stories page, or take the free Nervous System Health Assessment to see where you stand.